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Lupus Foundation of Mid and Northern New York, Inc.
RECENT ADVOCACY EVENTS
Patient Advocates Travel to Capitol Hill
ACR/ARHP Annual Advocates for Arthritis Event
Washington, DC February 24-25, 2008
Lupus Foundation of Mid and Northern New York President/CEO
Kathleen Arntsen and Secretary Sandi Frear, both members of the
Association of Rheumatology Health Professionals participated in the
Advocates for Arthritis event on February 24-25, 2008 in Washington, DC
New York State Advocates for Arthritis visiting NY Congressman Maurice
Hinchey. LFMNNY Secretary Sandi Frear is in the center of the picture.
Advocates Kathleen Arntsen and Sandi Frear with Dr. Stephen Katz,
Director of the National Institute of Arthritis and Musculoskeletal and
Skin Diseases (NIAMS) at the ACR/ARHP Advocacy Event.
Proud Advocates Kathleen Arntsen & Sandi Frear with Ann Kunkel (center)
at the Advocates for Arthritis Event. Kathleen was the first recipient of the
ARHP Ann Kunkel Advocacy Award in November 2007.
LRI National Coalition Advocacy Day
Washington, DC March 5, 2008
Lupus Foundation of Mid and Northern New York President/CEO
Kathleen Arntsen, Secretary Sandi Frear, and Board Members
Stephanie Darwak and Ellen Gloo and Volunteer Jackie Taylor attended the
LRI National Coalition Advocacy Day on March 5, 2008 in Washington, DC
Lupus Foundation of Mid & Northern NY Advocates
Stephanie Darwak, Ellen Gloo, Kathleen Arntsen, NY
Congressman Michael Arcuri, Jackie Taylor, & Sandi Frear
Patient Advocates Ellen Gloo, Sandi Frear, NY Congressman
Maurice Hinchey, Kathleen Arntsen and Jackie Taylor
Sandi Frear, FL Congressman CW Bill Young, Kathleen Arntsen,
Jackie Taylor, Ellen Gloo, and Stephanie Darwak
Sandi Frear, Stephanie Darwak, Kathleen Arntsen, IL
Congressman Donald Manzullo, Jackie Taylor, and Ellen Gloo
Stephanie Darwak, Sandi Frear, with Appropriations legislative
staffer Ron Anderson in NY Congressman James Walsh's office,
Kathleen Arntsen, Jackie Taylor, and Ellen Gloo
Congressman John Mica from Florida with his constituent Ellen Gloo
New York State Fibromyalgia Awareness Advocacy Event
Albany, NY May 14, 2008
Lupus Foundation of Mid and Northern New York President/CEO
Kathleen Arntsen and Board Member Stephanie Darwak participated
in a Fibromyalgia Awareness Event in Albany, NY on May 14, 2008
Patient Advocate Kathleen Arntsen receives the
Fibromyalgia Awareness Resolution on behalf of
NYS Fibromyalgia Patients in Albany, NY on Wednesday,
May 14, 2008. Pictured with Kathleen are Assembly
Members George Lattimer, RoAnn Destito and
Audrey Pheffer, the Primary Sponsor of the Resolution.
Senator Betty Little from Queensbury Primary Sponsor of S.5907 a
Legislative Resolution making May 12-18, 2008 Fibromyalgia Awareness
Week in New York State with Patient Advocate Kathleen Arntsen
and Senator Joseph Griffo from Rome. Kathleen was asked to serve as
Mistress of Ceremonies for the Awareness Event at the last minute when
Fibromyalgia Patient Sandi Frear became ill.
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