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Tarlov Cyst Disease Foundation

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Welcome to the Tarlov Cyst Disease Foundation Website! 

 This Foundation is dedicated to the mission of finding the best possible solutions that will resolve the life-altering problems caused by symptomatic Tarlov cysts (perineural cysts,sacral nerve root cysts). 
 
The Tarlov Cyst Disease Foundation is an advocate for patients and promotes research and education about Tarlov cysts. The website provides information about symptomatic Tarlov cysts, which may cause such symptoms as sciatica, difficulty sitting or standing for more than short periods of time, coccyx (tailbone) pain, pain in buttocks and legs, leg cramps, paresthesias (strange sensations in legs and feet), bladder and bowel dysfunction,chronic pelvic, abdominal, and genitalia pain.
If you, or a member of your family, friend or a patient has been diagnosed with Tarlov cyst(s), we believe that you will gain beneficial information and hope from your visit to this site. We also hope that you will share with us, what you have already learned, in order to benefit the research and education the Foundation is providing. The composite of our shared information leads to improved communication, understanding and proof that you are not alone in the struggle to find assistance and support. Our combined efforts will provide present and future benefits. Research and education are the keys!

The Foundation's achievement of specific purposes and objectives will provide hopeful solutions for the future. We will work tirelessly to bridge the gap of missing knowledge until that mission is accomplished.

Sincerely,

Tarlov Cyst Disease Foundation Board of Directors
 
 
 

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The Tarlov Cyst Disease Foundation’s web site, its databases, and the contents thereof are copyrighted by the Foundation. No part of the Foundation’s web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of the Tarlov Cyst Disease Foundation’s Board of Directors. Permission is hereby granted to print one hard copy of the information for your personal use, provided that such content is in no way modified, and that credit for the source (Tarlov Cyst Disease Foundation) and this copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.