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Guest Book
Posted
by Michelle Cole on 9/25/2008 at 11:49:32 AM EST.
Subject: |
| My friend's 5 year old son died from encephalitis. |
Posted
by William Nelson on 9/22/2008 at 4:17:12 PM EST.
Subject: Survivor |
| Back in 1995 I suffered from HSE. I'm glad to see a website with so much information. I'm still learning more about what changed my life. |
Posted
by Thomas A.Wood on 9/21/2008 at 5:55:21 PM EST.
Subject: I am a Post encephalitis person |
| I finally found somewhere for me.Thanks |
Posted
by Jill on 9/12/2008 at 9:10:54 AM EST.
Subject: |
| My sister had HSE May 2008 and is still recovering |
Posted
by Ingrid on 9/1/2008 at 8:21:11 AM EST.
Subject: Online support for survivors/caregivers |
| I have noticed how many of you have visited this website but did not join the email support group. Please go to where it says "NEW" Discussion Forum and sign up. We are all survivors and caregivers and we are here to help each other. |
Posted
by wanda johnson on 8/20/2008 at 3:17:11 PM EST.
Subject: informaation needed |
| my 17 yr. old daughter had encephalitis in june 2007. |
Posted
by Gracie on 8/16/2008 at 11:52:24 PM EST.
Subject: Survivor |
| I got Viral Encephalitis at age 4. I am now 14. I had trouble walking and talking-- I was paralyzed. I still have speech problems even 10 years later. I have trouble swallowing, so I sometimes drool. I feel like a regular teenager, but its hard to go to a new school where you know nobody and can't talk to them and have to use a computer to talk for you. |
Posted
by Kathryne Carter on 7/20/2008 at 10:47:18 PM EST.
Subject: herpes shingle virus in the brain |
| They removed part of the left temporal lobe, thinking it was a tumor. It was herpes shingles surrounded by t-cells (trying to keep it contained). It was taken out Dec. 2006, I'm a lucky gal. |
Posted
by Amy on 7/19/2008 at 11:58:23 PM EST.
Subject: my son |
| Mother of 17 year old in our 4th week after he was diagnosed with Viral Encephalitis.... |
Posted
by Michael Wiklund on 7/9/2008 at 3:59:44 PM EST.
Subject: Warren Smith |
| My friend, Warren Smith died in May 1969 from encephalitis in Minnesota. He was in the hospital for 3 weeks, with brain surgery, before he died. How common was was death as an outcome back then vs. now? |
Posted
by peggy morgan on 6/25/2008 at 7:30:05 PM EST.
Subject: knowledge |
| my son, Craig, passed away from encephalitis. |
Posted
by Ingrid on 6/25/2008 at 1:20:50 PM EST.
Subject: Email support for survivors/caregivers |
| Greetings! I have noticed how many of you have visited this website but did not join the email support group. Please go to where it says "NEW" Discussion Forum and sign up. We are all survivors and caregivers and we are here to help each other. |
Posted
by theresa62 on 6/18/2008 at 3:25:37 PM EST.
Subject: Help me to sign in |
| i need help i can not get into site. i registered and never got email from you and now i tried to register again and it says my email is already used. I need help here. |
Posted
by cathy rathsack on 6/6/2008 at 10:30:01 PM EST.
Subject: enceohilitil |
| I wish to talk to someone who has hadf encephilitis as I have |
Posted
by KDRichy on 5/30/2008 at 12:03:57 PM EST.
Subject: Daughter with enhcephalitis |
| My daughter has had viral encephalitis for 2 years now..If anyone would like to talk email richardkdouglas@hotmail.com |
Posted
by Sue Ireson on 5/28/2008 at 11:16:18 AM EST.
Subject: Viral encephalitis |
| I had viral encephalitis in February 2008. I have now been discharged from hospital and apart from more frequent headaches than I had before I am fine. |
Posted
by Robert Cramer on 5/19/2008 at 1:44:51 PM EST.
Subject: Viral Encephalytis |
| I had Viral Encephalytis in May of 2005. |
Posted
by rich on 5/18/2008 at 11:45:27 AM EST.
Subject: encephalitis |
| I had encephalitis in 1966. I recovered fairly well but now problems are beginning to pop up at an alarming rate and would like to learn more about the possible problems I face. |
Posted
by rich tomlin on 5/18/2008 at 11:36:40 AM EST.
Subject: encephalitis |
| I had encephalitis in 1966. I recovered fairly well but now problems are beginning to pop up at an alarming rate and would like to learn more about the possible problems I face. |
Posted
by LESLEY KENT on 5/15/2008 at 5:07:22 PM EST.
Subject: HSV encephalitis |
| I lived past my HSV encephalitis; but I can't really say I've survived. Thankyou for the support and inspiration your site provides. |
Posted
by alex veck on 5/13/2008 at 11:21:57 AM EST.
Subject: survivour |
| now 24.got encepephalitis age 20 while working in ibiza. |
Posted
by cheryldjenkins on 5/9/2008 at 9:56:20 AM EST.
Subject: more info on side effect |
| 10 year old daughterencephalitis in 2006 |
Posted
by cheryldjenkins on 5/9/2008 at 9:50:39 AM EST.
Subject: need mor info on side efforts |
| 10 year old daughter encephalitis in 2006 |
Posted
by Jane Winborne on 5/3/2008 at 2:54:01 PM EST.
Subject: Sarah Pearce |
| This is for Sarah Pearce. Sarah, I would love to e-chat with you . My daughter had viral meningitis/encephalitis 2.5 years ago. She too is now 11. She too has right frontal lobe damage. If you can e-mail me...that would be great.
janebaby@nc.rr.com |
Posted
by Heather C. on 4/25/2008 at 12:38:19 PM EST.
Subject: Survivor |
| Thank you so much for creating this website. I came down with Encephalitis about 3 months ago, and am already out of this hospital and back to work (thank you Piedmont Hospital!) I still and much more emotional than I used to be and lights bother me more, but I can do my job. It feels very good to be able to connect with other people who understand what it has been like to go through this. Thank you so much!
-Heather |
Posted
by sarah pearce on 4/5/2008 at 6:37:03 AM EST.
Subject: |
| My son had viral encephalitis 5 years ago which has left him with front lobe damage, he is now 11, this new website is much better than the old one. |
Posted
by Heather Thomas on 3/14/2008 at 6:37:24 PM EST.
Subject: Hi!!!! |
| Wendy,
Hi! Remember me? It's been a while since I peeked in on Ingrid's group!! How's everyone? Tell Them I say hi!!
Love
Heather Thomas Altoona, Pa. |
Posted
by april on 12/4/2007 at 12:20:15 PM EST.
Subject: Emerging infectious diseases |
| please see anindependantreview.org
Prevention is the only cure. |
Posted
by Jensibell on 11/19/2007 at 11:55:34 AM EST.
Subject: Hats off to the founders!! |
| Great work Wendy and Ingrid. Thanks for getting this website up and running.
Encephalitis is such a rare illness - often misdiagnosed, and misunderstood. It's great to have sites like this to share information and raise awareness.
Sending hugs to you both,
Jensibell
(English lady and E-survivor. Diagnosed Jen 2005, aged 26) |
Posted
by Sherry on 11/18/2007 at 10:53:26 PM EST.
Subject: Nice Job! |
| Applause, Applause for Wendy & Indrid!! A new chapter of E-Global has begun and what a great beginning this is for all. |
Posted
by Ruth Fell on 11/18/2007 at 3:18:24 PM EST.
Subject: Looks great |
| Good luck to you all |
Posted
by Ruth Fell on 11/18/2007 at 2:53:42 PM EST.
Subject: |
| Very nice site |
Posted
by Debe on 11/17/2007 at 8:37:56 PM EST.
Subject: A sibling view point |
| Hats off to Ingrid and Wendy for creating this wonderful site. Being the sibling this is a great place for us to understand our sibs disabilities.
Debe |
Posted
by Mandy on 11/17/2007 at 8:02:10 PM EST.
Subject: The growing of a new era !! |
| It is the growing of a new Era .... I feel that the wonderful support brought here at the newly joined Encephalitis Global by two wonderful ladies is remarkable !! As a caregiver, I have always felt the need to be with others that understand the sometimes awful effects of encephalitis. I thank you both for starting this website. |
Posted
by BLYTHE on 11/13/2007 at 8:27:11 AM EST.
Subject: Meds to Help Stress and Anxiety |
| I too have horrible problems with stress and anxiety. I'm working with a new team of doctors that for once seem to care. I will keep you up to date with the progress to let you know what they suggest at my next appointment. |
Posted
by Therese Surges on 11/13/2007 at 6:57:36 AM EST.
Subject: Congratulations |
| Congratulations on the formation of your new site. It's quite remarkable how you've two joined together for the betterment of the E community. |
Posted
by Toni Woods on 11/12/2007 at 3:07:39 PM EST.
Subject: Ingrid Guerci |
| I am a personal friend of Ingrid Guerci's and I applaud her for working so diligently on this site, and for her willingness to put herself out there and share her story. |
Posted
by Bevan on 11/12/2007 at 10:41:05 AM EST.
Subject: Bevan On The E. Train! |
| Thank-you~
President Station!
It's a Brave New World!
bevan |
Posted
by Ingrid on 11/10/2007 at 2:38:59 PM EST.
Subject: Encephalitis Global |
| Here we are! Welcome to the new world!!! |
Posted
by Melanie Vandusen on 11/7/2007 at 1:30:56 PM EST.
Subject: |
| Cool......another website for me to browse around and get more info.... |
Posted
by thepittz on 11/5/2007 at 9:46:26 AM EST.
Subject: Meds to help stress and anxioty |
| I am a encephalitis surviver now for 5 years. My GP has tried many different types of meds to try to help me cope with everyday life, but nothing has seemed to work well. I am anxious and stressed for no reason. Does anyone know of a med. that will help! Thanks, Mickey |
Posted
by testing on 11/3/2007 at 7:50:11 PM EST.
Subject: |
| test |
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